« March 2011 |
| September 2011 »
Rothmund-Thomson syndrome is a very rare genetic condition. Individuals with the condition display to slow growth, have sparse hair and skin problems as well as other symptoms. In this podcast a mother describes what it is like to have a child with the syndrome.
Posted at 03:39 PM in Experiences, Podcasts, Rare Disorders | Permalink
condition, contact a family, genetic, parent story, rare, rothman-thomson syndrome